MRKH affects each person differently so understanding the basics about MRKH is just the first step in learning how to live your life positively with your MRKH.
Whether you have a confirmed diagnosis of MRKH or are still waiting to find out what your diagnosis might be, you can read about the challenges and opportunities related to the syndrome.
MRKH is a congenital disorder that affects the reproductive tract of 1 in 5000 females. Typically the vagina is shortened. Congenital means that it is there at birth, usually diagnosed during puberty years when the menstrual cycle does not begin, (primary Amenorrheoa). It is known as a syndrome as there are symptoms which can affect other parts of the body, catagorising 2 types of MRKH. One associated with the complete or partial absence of the cervix, uterus and vagina. The other type can affect Kidney Development, hearing, and skeletal growth.
Without a uterus, pregnancy is not known amongst woman with MRKH although uterine transplantation is in its primary stages and may be a viable option to parenthood. With the fallopian tubes and ovaries usually intact, it makes it possible to have genetic offspring via IVF and Surrogacy. Adoption is another option to raise a family.
There are 2 recognised specialist hospitals in Britain – University College London Hospital (UCLH) and Queen Charlotte's and Chelsea Hospital.
For further information and how to get in touch with them please see ‘Professional Advice’ page.